Who collects data on NCDS?
NCDS Age 61 (Life in your early 60s) is a collaboration between NatCen, Kantar and the Centre for Longitudinal Studies (CLS), a research centre in the UCL Institute of Education, which is part of University College London. CLS is the data controller for NCDS, making decisions about the data collection on the survey.
NatCen Social Research and Kantar are responsible for collecting the data on NCDS, through interviews, paper and online questionnaires, measures taken by nurses and linking survey data to additional administrative sources. NatCen also act as the data processor on NCDS, processing the data collected so that it can be used for research, while ensuring that it will not be possible to identify any participants in the data.
NCDS is mainly funded by the Economic and Social Research Council (ESRC). The aim of the study is to generate data for research purposes and its funders and UCL are Public Authorities/ Bodies – this is regarded as a ‘Task in the Public Interest’ under GDPR legislation (Article 6) – and is the lawful basis on which we are permitted to process your personal data.
What will happen to any information I give?
We will treat your information in the strictest confidence under current data protection legislation. The results are used for research and statistical purposes only. All survey findings are anonymised, which means that it will not be possible to identify any participants from the published results.
Your personal details are held by and stored securely by the team who administer and process the results of the survey at NatCen. All information you provide to us is stored on our secure servers, in line with international best practice and NatCen’s ISO27001, ISO 20252 and Cyber Essentials Plus certifications. We have a comprehensive set of policies and procedures to prevent unauthorised access which apply to all parts of NatCen Social Research, and alongside our ongoing programme of internal audits we undergo formal external audits every 6 months to ensure we continue to meet all the requirements of ISO27001 and other international best practices.
Your details will never be passed on to anyone else without your permission, with the exception of one security-checked organisation directly working with us to administer the survey which are the printers (who print the letters we send to you). This organisation is from NatCen’s Approved Supplier List and has been vetted by us, with signed contracts and agreements (refreshed every 12 months), to ensure that strict data security arrangements are followed.
We ask you separately for your permission to send your personal details to link NCDS survey data to administrative health or economic data sources, and to send your nurse visit results to your GP.
As we would like to look at long term trends, we have not set a limit on how long we would like to keep the information you give.
You have the right to request access to your data, to amend them if they are incorrect, or that your data are deleted (if still in raw form). Participation in this research is voluntary and you have the right to withdraw at any stage.
You can contact the NatCen Data Protection Officer by email at firstname.lastname@example.org To read our data protection policy, visit www.natcen.ac.uk
The data controller for this project is University College London (UCL). The UCL Data Protection Office provides oversight of UCL activities involving the processing of personal data, and can be contacted at: email@example.com
If you have a complaint, please get in touch by contacting NatCen on firstname.lastname@example.org or Freephone 0800 652 4574. You also have the right to lodge a complaint with the Information Commissioner’s Office at: Information Commissioner's Office, Wycliffe House, Water Lane, Wilmslow, Cheshire, SK9 5AF, telephone 0303 123 1113, https://ico.org.uk/concerns